Matthew, I was diagonsed in May stage 4 tongue/tonsil and one lymph node. This has been a nightmare since. Had to hve my teeth removed before tretments and a wk later suffered a stroke. All I have to say is hang in there. Our stories are all different. I began treatment July first. 35 wks rad. and once a week for 7wks, cisplaten. My first Pet Scan in Nov. showed as cncer free. At the moment I have gruelling tongue pain and constantly feels swollen. Not sure if this is norma.The dry mouth is excrutiating. I am almost 5 mos. out of treatment. They have me on Oxycontine 24hrs. for past 7 m,and I am 100 percent feeding toube. if anyone can give me advice, ideas I would appreciate. Having a difficult time trying to figure out this chat format. Some days I dont know what Im doing. Not much of a computer person. I live on Whidbey Is. so 100 miles from any support groups. Good Luck Matthew!