OP  Contributing Member (25+ posts)
Joined: Dec 2013 Posts: 26 | Thank you for sharing Patty. My wife has a folder we have put together with notes and dr. files so it sounds like we are on the right track there. After the positive biopsy, did your husband do a CT scan, and if so what did it show? My lesion didn't really show up that well at all on the scan but of course we know it's there. This has me worried because if it's not showing up on the scan, how accurate is the scan in regards to the cancer being elsewhere? No lymph involvement or any other issues were showing but I'm still very anxious/cautioius/scared. They have stuck the camera up my nose and looked at the pharnix, esoghagus and voicebox and that looked clean too. This waiting game is tough...your stories on this forum are truly inspirational, thank you for this
40 yr old male--very active, ns, rarely drink
T4aN0M0 HPV+
11/21/13--Lesion on back right of tongue, biopsy neg, CT neg
11/25/13--2nd biopsy DX SCC BOT
12/21/13--T4aN0M0 via PET and MRI scans
12/30/13--Begin Cetuximab/Rad Treatment
Treatment currently at Stanford Medical Center
2/14/14--Finished 36 rad treatments
2/18/14--Finished 8 cetuximab infusions-completion of treatment
4/26/2014--MRI showed marked tumor regression
5/27/2014--PET clear
8/18/2014--MRI clear
2/22/2015--MRI clear
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