Mathew, welcome to a club nobody wants to join.

If you read my signature, you will see that my husband's been through almost the same situation.

You must be your own best advocate. Try to grab a family member or friend to help you remember every single detail.

So far, I have made recording of the different doctors, and we keep a list of questions. We have an appointment next week to see if our doctor feels is necessary to remove nods.

During the glossectomy operation, the doctor he did look into the pharynx, esophagus, and voice box which all look clean.

Best luck to you!
Patty

Patty / husband Dx with Stage 1 SCC
November '12, BOT ulcer
June '13, first biopsy-negative.
October '13, second biopsy-positive
November '13, second opinion at CCC, T1
December '13, partial glossectomy.
September '14, biopsy on lymph nodes, 1 tested positive.
October '14, right side neck dissection. 14 nods out, with only one affected.
November '14, T1N1M0 radiation in the recommended by oncologist
December '14, radiation treatment