Hi Nina: This is about the best place on the planet for what you seek. It is one huge family, many thousand strong who actually know what you are going through and who are more than willing to share what they have learned to help you get through this more easily. It will be a tough road to drive, and it will have potholes along the way. But, having others point them out ahead of time will help you avoid a lot of flat tires along the way.

Get yourself a spiral notebook to write down the hundreds of questions you are going to think of. Make a list of questions for the doctors, the nurses, the forum members, etc, etc.

There are hundreds of pages of information here both on the forum and on the website to help you educate yourself about all your husband is going through. Better education on your part makes you a better advocate on his part. It will make you take a no nonsense assertive stance with the medical team. If you don't understand what they are saying it will make you keep asking, over and over if necessary until they answer you and you understand. You will learn that assertiveness here, just like all the rest of us did. It really does give you better results and will make your husbands journey more comfortable.

So, get started reading. When you get stumped ... ask. When you just need someone to help keep YOU strong, here is the place to come.

You can do this Nina, and so can your husband.

Welcome to the family.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good