Welcome to OCF! Im so sorry you are overwhelmed by being a caregiver. Having young children you really do have your hands very full. Do you have any relatives or friends nearby who can give you a hand. You are in the right place for support. Caregiving is a very difficult task, juggling so many things at once while trying to keep a smile on your face for the patients well being is hard.

There are all kinds of little things that would be a huge help to you right now. Just taking the children out for to lunch or to the movies would give you a much deserved break. How about getting a visiting nurse or home care service to help out? Many insurance companies here in the US cover their costs. Think of anyone who asked you if you needed anything.... take them up on it. Now is not the time to be proud, even someone bringing over a covered dish dinner would help. At my former employer we would take a calendar and all select a day where we would make a home cooked meal for my friend's family while she was going thru her cancer treatments, plus we always included something for the next mornings breakfast. If your friends would do something like that it would take a huge load off your shoulders.

Drainage is normal. What isnt normal is if it would change color or all of a sudden it would have a very foul odor, so try to watch for any changes. Your husband has been thru a huge surgery and yes it can take weeks, before he perks back up. If he is on pain meds that will further push him towards being sluggish.

You now have a whole set of new BFF's that are in yoru corner to help. Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile