I'm Bill, a 57 yr. old male from Rhode Island. in July, 2012 I was diagnosed with Stage 4 throat cancer with HPV 16 thought to be the cause. After a brief delay to get a 2nd opinion and dental work, I began treatment . I had 39 Radiation treatments (IMRT) and 8 weeks of Cisplatin Chemotherapy, ending in Nov '12. In Feb '13 I had a clean PET Scan but started to get ear aches in June '13. MY ENT did several endoscopes and other exams but couldn't find anything. However this past Oct a CT Scan found a mass in my neck and a small spot in each lung.
They have told me my only option is Palliative Chemo and we are considering starting treatment on Dec 9th. The proposed agents are Carboplatin, 5-FU and Leucovorin. This may slow down the growth of the tumors but does have side effects that may hinder the quality of life for my final days.
My question is have any of you been treated with these agents and what type of side effects did you experience. Currently I live a fairly normal life, minimal pain, just a bit fatigued much earlier than before. Thanks in advance for your feedback....Bill