I felt good getting out of the house, seeing the sights, people, and ate some clam chowder in Au Bon Pain, a commercial eatery in the hospital, and then saw the social worker. He said getting transportation to NJ, interstate, will be difficult. Obtained some of my records, and then onto the SPOHNC meeting. The facilitator, a SLP, is going to have a swallow study done on me.

Onto getting home. My pick up with access-a-ride was at 5PM. It did not arrive until 6:15PM, and got home after 7PM. I don't know how I'm going to do it during Treatment.

Ed, this isn't really new. I've been like this for 4 years after my chemo in 2009. In fact, I was worse, got a little better, , but depending on any co-conditions like anemia, kidneys, diabetes, neuropathy, dehydration effecting me, and then after each radiation, surgery, chemo, I'm back to where I started. I only go out to see the doctors basically, and use my walker to sit on to cook, which I havent done in a while, have a shower chair, and have everything delivered, food, laundry, prescriptions, and a cleaning woman once a month to conserve energy. I did have a good run going to the gym in the spring a few days a week, which required special supplementation from my doctor, but after the kidney failure in May, recurrence in August, I haven't been there since, and I used to go to the gym sometime 5, 6 days a week since I was 15, depending on my routine, and running, swimming, biking, etc.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs