 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | You. Rock. Paul.
I'll come out there, you cook and you can be my personal trainer too. My muscles can't remember what they are supposed to do. I guess my muscles have succumbed to CRS disorder.
If the collagen helps strengthen swallowing muscles please let us know. Always looking for a boost even if I spent the last 3-5 years trying to stop collagen production of all things.
Get up to pursing the lips and trying to blow out through your mouth with bursts of air. It strengthens the coughing and breathing muscles. After more recovery of course. Working on all that will help the body adjust to vagus nerve deficiency.
Rock on you beast!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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