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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | So far there hasnt been any commercial products made to replace the former effective Biotene products. Brian is working on this with some of his contacts. It could be a long road to get anything on the market.
The 2500 calories daily are a MINIMUM! Do not skimp thinking you can make it up the next day as tomorrow it never happens. If you shoot for 3000 a day and only get 2500 then you are still ok. Water intake daily is a minimum of 48 oz some will say it needs to be more so push yourself to take more in. Water is especially important when having chemo as chemo can cause kidney problems so you need to drink water to make sure you flush that poison out of your kidneys. If you can stick to these guidelines and do this daily you will get thru your treatments much easier.
Have you had a hearing test or been to your dentist yet? You will need flouride trays made to help protect your teeth.
Im surprised you were restaged and the tumors were given their own stages. My first round I had 2 seperate tumors. This is pretty rare but sounds like you are like me with 2 OC sites at once. Each of my tumors was staged and classified, one moderately differentiated and the other well differentiated but both were Stage I. I guess different facilities will do things differently. Just so they will eliminate the cancer thats whats most important.
At this point, eat everything you can and then have seconds. Pack on a few extra pounds as most will lose considerable amounts of weight during treatments. If you want to drink your calories you can try Carnation Very High Calorie formula. I couldnt stand the taste of any of those drinks but some seem to do ok with them. Each container has 560 calories per day so if you drink 5 or 6 daily then you are ok.
Good luck with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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