Hello folks,

So I got a call yesterday from the RO that they are re-staging from 3 to 4 due to the pathology coming back positive on BOT in addition to the tonsil. The positive note of the pathology report is that the stain came back 16+

So the RO said that she has been in contact with my MO (whom I haven't met yet. but will meet this upcoming thursday) They were originally hoping to not have to radiate both sides of my neck and were going to use Erbitux if I had neg margins.

With the report results, they feel since the cancer has spread that it is now necessary to hit both sides, more on the right than the left though. They also believe it warrants the Cisplatin rather than Erbitux. Also they are recommending a PEG.

I was pretty prepared for this. I really like the RO and have a good gut feeling about her. Family and Friends are urging me to get a 2nd opinion so I am going to do that part as due diligence.

I guess my real questions that would probably get answered by a professional at some point is to do with the PEG. RO is recommending a diet of 2500 calories a day. Is there special formula or do you all just use ensure?

With Biotene being hijacked by corporatist thugs, is there a replacement mouth care system that anyone can recommend to keep the mouth area healthy?