Oh sandy, I've been there as I'm sure many others here have been too. Knowing what was ahead of me had me in that rabbit hole for two months. Nothing my family or friends said helped me. (Tho they so sweetly tried) Coming to the OCF was a great comfort to me, knowing others had walked the trail before me and would walk along my journey with me was very comforting. We are here.


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!