Hopefully, I will have some information to post next week. I persevered and was able to schedule with a dentist assigned to Dana-Farber's Head & Neck department. I am asking to have all his teeth evaluated, prior to extraction, which is scheduled with local oral surgeon on 11/5.

I understand that there is no magic treatment to resolve these dental complications, but I think an opinion from a CCC should be helpful. Echoing everyone else, the lack of support and guidelines for these long-term effects, makes decision making nerve racking.