I have the same questions that you ask in the beginning of your post and hope that others will respond.
My husband is 5 yrs post tx. (starting out with healthy teeth) In that time he has had 3 root canals & is currently undergoing HBOT prior to wisdom tooth extraction due to bone loss. I am finding it frustrating that there is no team approach to monitor these issues. I am constantly worried about whether we are getting the best advice possible and angry at how inexact dentistry seems. Do the routine x-rays ever show anything before it's obvious that there is a problem?
I have had to stop obsessing about whether his wisdom teeth should have been removed prior to tx., but it did not help me to recently find out that in the Navy, wisdom teeth are routinely removed, even healthy ones.
I have made contact through the patient coordinator at Dana-Farber regarding a possible dental consult. However, we all need someone local. I have found a local experienced oral surgeon. But again, they do not follow routine matters.
This recent set back has brought forth other caregiver long term emotional issues for me. I will post about that separately.
Lottie
CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin. 1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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