Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. Im so sorry you have the need to join our group! What you have described is no walk in the park. Your husband has very involved surgery coming up.
I understand your concern about the tumor growing while you are waiting for the surgery date to arrive. Unfortunately there isnt anyone who can tell you what the rate of growth will be for the tumor. One thing you will hear over and over again.... everyone is different. This is one of those areas where that phrase is the answer. Everyone will respond in their own way. Some individuals will have their tumors grow at a slower rate than others. Too many variables make this question unanswerable.
As far as the wine goes, everything in moderation. It may be quite a long time before he will have wine again so he probably will want to have a glass once in a while until his surgery. Use caution with the wine if taking medications.
Right now focus on eating. Your husband should be eating all his favorites prior to the surgery. It could be quite some time before he will be able to eat them again. For most of us the sense of taste and ability to eat are temporary road blocks but for a very few, they can have long lasting problems in this department. Better to go into this without any cravings, so eat everything now.
Before your husband has the surgery, he should visit the dentist and make sure his teeth are in tip top shape or they may want to pull any that arent in good shape. He should have a full blood count including thyroid and testosterone counts. He should also have a hearing test. Better to get all these things out of the way so you dont have to worry about them while he is recovering from the surgery. A mandibulectomy can be brutal! Ive had it done and recovery can be quite a long road. Your husband is lucky to have you by his side to advocate for him.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |