Brenda I am glad to hear that you are doing better, I have severe lymphedema and see my PT once a week for lymph channel massage. She has ordered a compression garment for me. I don't know how bad your lymphedema is but thought I would mention it. I too preform the massages at home. But seeing my PT is a treat because she seems to do it so much better than I. My Neck dissection being preformed on irradiated skin and only a few months between Rads. and surgery is what I think is the main reason that I have developed severe fibrosis that started at the insision site. And My PT works for Kaiser. So agreed about this treatment that in my opinion lymphatic massage is slowing the progression of both fibrosis and lymphedema. These conditions are progressing in me. You mentioned steroids. No one on my team recommended it. How helpful was it to you Brenda? I don't know where your at with the Erbitux rash, But my MO did recommend traditional acne treatment for it. Oxy max. action face wash did wonders and very quickly at that. I am not a dr. And I know that your team did not recommend this treatment. Just to let you know what worked really well for me with no side effects. But is very drying so I only leave it on for half the time it recommends. Its only been about a month since my (unsuccessful) surgery. And do hope that this at least stops where it is, even if there is no improvement going forward. I am glad that your situation is not as advanced and aggressive as mine. Just wanted to reinforce what you already seem to understand about these conditions. And I apologize because I just realized that I kinda hijacked your thread. But again glad that you can see the light at the end of this tunnel of hell! Sincerely Shawn U.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.