 Senior Member (100+ posts)
Joined: Aug 2013 Posts: 144 | I have the same problems with my mouth. I will see a PT. in about a week. After the hemmorage I gained some opening ability. but has gone back to where it was before the bleed. I am sure along with the blood that I got a lot of the lymph out and fibrosis seemed a bit better as well. Can they go in a suck some of the lymph out? I think if they can it would help me get through the danger zone of bleeding again from my tonsil bed. I hope that you find something that will Help your husband get his mouth open more. shawn U
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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