Thanks everyone for your suggestions and comments! This is a very frustrating problem (aren't they all). I agree with you, Christine, that surgery is probably not the right way to go, He did have major issues with healing and infection.

Paul, you mouth opening is about the same as Clark's. What kinds of foods are you eating? He has a really hard time getting ANYTHING in his mouth.

We will look into acupuncture. And, Wanda, thanks for thinking of us!

I'll let you all know what we pursue and what the results are.

Best to all-
Anita

Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections