Hi, I'm so sorry about your diagnosis. Thank heaven you're doing such a great job taking care of yourself, you've had to be quite persistent about it too! Your diligence is another factor in your favor here.

CCCs are excellent choices, but not always your best choice. If you live closer to a large teaching hospital that has a dedicated HNC team, consider getting a second opinion there. Studies posted on this site show better outcomes at large academic hospitals, not specifically CCCs. You may even find, as I did, that the closer institution is on the cusp of CCC designation, if that matters to you.

For some people relying on a more distant hospital can be a significant added burden for you, your family and your finances. I would never have guessed the number of appointments and support treatment entails; for example, I have 21 medical appointments over the next two weeks!

Please also choose your own docs, not just whomever comes up in the rotation when you call. I looked at multiple doctors' published research, roles in professional groups and references from other docs to handpick my team.

My point is to choose your medical institution carefully, and rely on more than just the CCC "brand" to make sure you get the best care possible when all factors are considered.

Good luck and keep us posted!