Thanks, Don. You seem like a positive, upbeat kinda guy. Best to you too.

davidcpa, I don't know if it's HPV related or not. They haven't said. All I know is that it's SCC. All I know is that I DO have oncogenic HPV (which strain, I don't know), so I'm not surprised if it's related to that. I told the ENT to transfer my case to Stanford, since from what I've read on here I should really go to a NCI CCC. So far, no primary. The ENT scoped me and couldn't see ANYTHING. A few others (ENT) looked in there too, and said the same. I myself have looked at my mouth MANY times, pulling out my tongue so I can see all the way back, looked at the tonsils, everything looks "normal". However, I know a good percentage of tonsil cancers can be subclinical. I was told by Dr. Gillison that about 30% of tonsil cancers are subclinical. So, maybe my primary is lurking around where it can't be seen. However, I figured after a year of having a positive MET lymph node, the primary WOULD have grown and become visible by then. I dunno.

I don't know about Stanford right now. Haven't heard from them yet. My doctor just forward my case to their ENT oncology department. Waiting for appt.

Last edited by undiagnosed; 09-14-2013 10:26 AM.

Been misdiagnosed several times since Nov. 2012.
Sep/9/2013 - Recently diagnosed with SCC in right cervical node, with possible multiple metastatic nodes.
Trying to get into Stanford CC.