Damien, being a caregiver is often a thankless job. You especially have your hands full with having 2 young children. I have not had a glossectomy so I cant help with first hand knowledge but I can tell you about some of the members Ive witnessed over the years on the forum.

Having oral cancer on the tongue does not always mean losing the whole thing. Im sure the doctors will take as little as possible to receive clean margins. Thats very important, its better to take the whole thing if the margins would not be clean. Depending upon how much of her tongue would be left, she may get a free flap which would be tissue taken from usually the wrist area and reused for her tongue. With the help of a speech pathologist and alot of hard work, she may regain her ability to speak clearly. So much of this is dependent upon what the doctors do and also up to how strong she physically is to get past all of this. Thats why its so difficult to answer your questions.

Wishing you both all the very best with everything. Please know we are here for both of you so dont be afraid to post when you have questions or need some support.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile