Welcome Damien and I'm really sorry to hear that your wife is facing more problems.

I've been a member of the OC club since 2005 and have had 4 partial glossectomies and RT. I can't speak first hand of the issues one would face from a total glossectomy, but many on the OCF forum have been thru it. From what I recall of some of their stories speaking and eating is still doable. One member that comes to mind is misskate. Some members have had RT more than once, so that would be a question to ask her doctors.

You can search the forum using the search box in the upper right corner. You can use the User List to look for posts by a particular member. Also, the main pages of the OCF website contain a lot of information and you can do a search there also. I've found the forum and the OCF website to be the best source of information and support out there.

Oral cancer is tough and the treatment is brutal. We all come out the other side changed. Having young children as you do is also difficult as you want to protect them from what is going on. My kids were teenagers when I was diagnosed so they knew more of what was going on, but it was still tough for the whole family.

I pray that the news you receive is good, but if it isn't we will be here to help you.

For now, make a list of questions to ask the doctors, use OCF as a resource and a source of support. Ask questions here and we will do the best to help you.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)