Hi Mamacita,
After making a few calls to the RO I finally will start radiation on Monday as well as Cisplatin 3Xs.
To answer your question about Cetuximab well when first diagnosed, the ENT surgical oncologist said that surgery was out of the question. It would be too extensive. He said I should consult someone for chemo with radiation. I went to a CCC, after speaking with the doctor about my wanting surgery, I was started on Cetuximab and after one week my lymph node responded, what I thought was very dramatically. After my second chemo I had my next scheduled visit with my ENT oncologist. He looked down my throat and said that he could do the surgery. I asked him about his previous comments. He shut me down by saying that he was the expert. He did not follow up with any other info. I continued with my chemo and told the CCC oncologist at the scheduled visit with her. She said that the ENT did not contact her with any info. She called him and he said that he didn't remember exactly what he had told me. I stopped going to that doctor. I went back to my second opinion ENT surgical oncologist. He had been more thorough at my first visit. He still stated that Cisplatin and radiation was the way to go. So, between scheduled office visits and misleading info all of July and most of August went by. That is why I was taking Cetuximab with no radiation.
I am wishing the best for you. Hang in there. Talk to you soon.
Steve