Paul,
Given your very extensive treatment history and your own thirst for knowledge, you are quite qualified to pick and choose and assemble your own custom medical team, combining independent and CCC expertise.
The issue the other 95% face is going to a doctor on Monday, getting a biopsy and results later that week and learning they have cancer. Then everything is just a blur, fast and furious, and there is no time or ability to get up to speed sufficiently to make informed decisions about treatment and selecting the best medical staff for the specifics of ones case.
When faced with obvious substandard care such as "T" experienced, it becomes much easier to say PEE-OOH, this stinks and I am out of here. But most providers offer reasonable patient interface so it is much harder to evaluate their competence.
Even asking simple questions like, "How many cases like mine do you handle each year?" These can be overlooked with the overwhelming cloud now looming overhead, thundering CANCER at you.
So, if a CCC is an option for care, it is quite reasonable and prudent to seek and push for having your care at a CCC, just play the odds the CCC will offer better outcomes.
don
Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at
http://beatdown.cognacom.com