Thanks for everyone's responses. I live in Denton County, just north of Dallas. Trismus is so tricky. Right after radiation I was sailing along just fine (as far as opening my mouth). I did the good old tongue blades each day but thought they were a waste of time. Over the course of a few days my mouth went from a 35mm opening to less than 25mm. I then got even more serious about the tongue blades and spend about 2 hours each day with stupid blades in my mouth. About a month later, and over the course of a few days, my mouth opening again shrunk in half. I fought with the insurance company for 4 months to get the Dynasplint covered. Dynapslint helped, and is still helping, but now I am not sure. Over the course of the last few days, I have gone to 5mm before dynasplint, to about 12mm right after each 20 minute dyanasplint interval. My problem is I cannot live my life with tongue blades or dynasplint in my mouth 24x7. I am doing 90min to 2hours every day and still working full time.

I also had a weird infection and osterodonecrosis, which caused might lower right maxilla to become exposed, thus I am almost done with 40 rounds of HBO treatments.

I am just so worried about not opening my mouth, and getting more worried about eating (forcing food thru the small opening). I am becoming less social as I never go out to eat with friends at work or socially now as it is too embarrasing to eat in front of others.


SCC 9/2012 right upper right maxilla
Surgery 9/27/2012 to remove portion of right maxilla
DX-after surgery cancer cells in margin
RAD-33 TX ended 12/05/12
2/13-current-Severe Trismus and Radation Fibrosis
6/13-clear PET
6/13-Infection in radiation area of mouth, with surgery to drain infection
8/13-ended 40 HBOT treatments
11/13-Clear PET
3/14-Botox injections for severe Trismus
5/14-Clear PET/ 11/14-clear PET
Male age 53, non smoker, non drinker