 Senior Member (100+ posts)
Joined: Feb 2005 Posts: 118 Likes: 1 | I too have severe trismus. Unfortunately I have not been able to locate a specialist. Paul mentioned electrical type stimulation, and he may be referring to VitalStim Therapy which is neuromuscular electrical stimulation for oropharyngeal dysphagia. It was not helpful for me, but my speech pathologist has had success with other patients.
Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
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