| Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | Paul - Just an FYI, OCF is one of several funders of an RTOG clinical trial looking at replacing cisplatin with Erbitux keep radiation the same. This trial was started a long time ago, and should publish results next year. The idea was to use a less toxic chemo and see if the end results would be the same. Our portion of the trial was to pay for 100 (100 clinical centers in the trial) iPads that were custom pre programmed with a questionnaire that patients would fill out once a week. It looks at the obvious things like pain, nausea etc. but we also are looking a general quality of life questions too, that no one has paid much attention to. (Treating the disease and not the patient as usual is the norm too often). So we had a chance to piggy back on the existing RTOG with a new portion - the QOL questionnaire. While some people have referred to this one as something that is looking at "dialing back treatments" it really isn't dialing back the one that has the greatest long term negative impact, radiation.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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New user, trying to figure things out
| HPVpositive | 08-15-2013 07:17 PM |
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