Thanks everyone for their well wishes and we are keeping strong despite the difficult situation Jenny currently faces.

Since my last post, we have met three more specialist doctors who have pretty much said the same thing as per our doctors back in Melbourne - the cancer is now terminal and we have two options:

(a)Receive chemotherapy (Combination of 5FU / Taxatol + Erbitux) in hopes of slowing down the spread of the cancer and reducing the size of the tumor in the lungs. Unfortunately, the toxicity from this treatment regime is incredibly high and the benefits from such treatment are generally minimal and will have adverse affects on Jen's currently good health status.

(b) A wait and see approach as the cancer is currently in idle (no growth since May till now) and Jen is showing no symptoms whatsoever and is in good health despite the poor diagnosis. Monthly CT scans + check-ups will be scheduled and Chemotherapy + Tomotherapy will be used as a palliative option later down the track if required.

Jen & I are leaning towards option (b) at this point as the cancer is not causing any issues at this point and is in a holding pattern. A final decision on course of action will be made once the results of our next CT scan scheduled for late September is received to see if the cancer remains as is or shows additional growth.

In the meantime, we have decided to use this time to go enjoy our time with Hunter and ensure we do everything possible to make sure Jen continues to feel fit and healthy. Going on a strict diet (Paleo) + routine exercise + having a good'ol laugh with Hunter (most important!) will be our treatment plan for now and I am confident that this will have much higher chance of beating this thing than any chemotherapy regime.

I guess the unknown of how long this holding phase will last is what concerns us the most at this point of time (it may be a few months to many years.. the doctors are unable to say) but at least we have some sort of plan and course of action to adhere to during all this confusion.

We thank everyone who have been praying for us and wishing us luck. I guess one thing that I have learnt from this journey is that there is a lot of good people out there in the world and it makes us feel that much more at peace that Hunter will still be living in a society where good still prevails.



6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away