Wanted to put all pertinent info in 1st post but was having tech difficulties...pain came on overnight after NO exertion of any kind...rather than getting better, it seems to be about the same-after a week...RATHER intense!...saw doc on Wed-couldn't tell me what caused it, or why-just gave me some fentanyl patches and a follow-up with physical therapy (which hasn't happened)...pain in a bizzarre place-in FRONT of my collarbone just under the tumor (little bit swollen, but BOY is it tender!), and out toward the muscle at top of arm (forget what it's called)...VERY sharp pain when I lift my arm, move my arm, lift my arm.
Why the heck would he just be scratching his head about this? I feel that it is DIRECTLY related to the tumor(that has started growing like gangbusters in the past 2weeks or so)
Is it really THAT unusual for something like this to hap0pen? For the past 6 months as my tumor has been shrinking (yay) it also was tightening around veins (YUP! Jugular has blood clot in it now), nerves (been having bizarrly intense "charley horse" muscle spasms that come and go with no warning), and tendons-if I suddenly move the wrong way...YEOWCH!!!! Now am I going to have to add this debiliating arm/neck/shoulder pain to the mix?? I certainly cannot function anywhere NEAR normal as long as this is going on, and it's VERY frustrating and de-humanizing that the medical establishment continually looks upon me as crazy and seems to be saying, "it's just not POSSIBLE that it should be that way". Of course speaking with about 1/3 of my tongue adds a certain element of "what the hell is he ranting about, anyway?"

Some days are spent apologising for other days when the frustration outweighs the civilizing influences that keep me calmly explaining the same thing again and again-and STILL never really knowing if I'm actually getting through. Now with the fentanyl-that I seem to be having an itching reaction to (yes, I took the thing off) exerting ITS' effects-plus the pain is gonna come back with friends...I'm not sure how long I can keep up the "make nice" face.
HELP!!!! Am I really the ONLY person ever to have gone through something like this? Why have I always got to be so...unique???