Hello to each and every one of you incredible folks! Haven't been around much-I seem to have mised the exact moment, but I done been whacked with a giant MONKEY WRENCH!!!...hard Woke up last Sat am and my shoulder was incredibly sore. Like I've over-xerted WAY too hard in sports and torn something important to being successfully able to lift my arm (esp w/weight of ANY amount) INCREDIBLY sharp pains shooting through the top of my shoulder and the muscle at the top of my arm leading DIRECTLY to the tumor. I cannot use that whole side of my body for the most part without pain. There are very tender tendons going from near my neck and another to the muscle top of arm.
My tumor has been growing quite explosively lately-even though my Doctor diasagrees-the last CT "report" reported no overall change in size, BUT I can tell when the damn thing is growing inside my neck and skull and shrinking elsewhere.
Having problems typing this post-for some reason I can't see what I'm typing (and I'm not a good typer at all)
Sorry- I;m using a fentnyl pach and it's got me totally loopy.
ABTBODY HAVE -OR HEARd OF- SImilar?


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!