OP  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Thanks for the update Nancy. I hope the soreness goes away for you soon and that you can start eating real food soon.
As for us, I called the RO's office today and it seemed that the referral is kind of in limbo because our nurse/case manager was away when we saw the doctor last. When I spoke to her today, the nurse had no clue what our discussion with the RO was and which doctor we were being referred to. Anyway,she promised she would try to sort it out for us. I am so very glad that I called today.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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