John's RO told him that he would have to be taking all his supplement by mouth AND gain weight before he could have his PEG taken out.

We have just been told today that John will go in for a gastrocopy next week to determine exactly what the problem is with his swallowing. At that point, I suppose they will consider what the next step should be, maybe putting in a stent and dilation. We will have to see. I am glad that he will be in the care of the gastroenterologist for this part of his treatment since the surgical oncologist flatly refused to consider a dilation.

In the meantime, John has been told by his GP that he now has low thyroid and he has developed severe sleep apnea. It has been a lot of doctors' appointments for us the last few weeks. In the midst of all that, his feeding tube sprang a leak and we had to have it fixed. Never a dull moment.