Good luck with the radiation. Maybe they can increase the pain dosage or switch to another, everyone reacts differently to them. His symptoms don't sound that unusual. It's tough treatment to go through, and was like that myself my last round, and was by myself. All I can say is keep the doctors abreast, to treat what you can, since he is being hit all around by several means, and conditions, like the mucocitus by brushing the teeth after each meal, rinsing, flossing. Some like a water pic, treat bacterial, viral and fungal infections, like thrush, but can also be a combination of either, dry mouth. Adequate nutrition, hydration, sleep, which is all I wanted to do, which is not a bad thing to do, neuropathy from chemo. Some radiation facilities spray your mouth to cleanse it out, daily, and hydrate you with IV fluids.

They say, you can have the best medical care in the world, but more importantly is the support you have, during, after treatment that matters, which seems like you are doing a good job with.

Hang in there, all this shall soon pass.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs