| | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts) Joined: Apr 2013 Posts: 92 | Thanks to all the replies. Special thanks to "T", what you said rang true and helped the most. I did not have any biopsy, the surgeon said there was nothing to biopsy, but what you are saying about the swallowing sounds exactly like what I am going thru. Also the comment about the narcs, I forgot that before my first surgery I lost some weight just because I was on narcs for the cancer pain and I had no appetite. I bought some protein powder, ice cream, fruit, whole milk today. I will try smoothies and shakes and start walking on my treadmill tomorrow. I will also check out the foods on that list Paul.
The nutritionist said it MAY be trying to get infected, the doc said no antibiotics and I was told to clean with hibiclens, keep dry, and half strength hydrogen peroxide twice a week and keep an eye on it. Very thank full they do not want to pull it, I have inserted many nasal tubes and it is not something I want to go thru, on top of that I am not sure how I could get to work and work with it in place. The nutritionist also told me what I am experiencing is not uncommon and assured me my desire for food would come back so I decided to try my best and stop stressing about it. I was very stressed about my progress and I am sure that wasn't helping with the appetite at all. My RO is really tough on me about eating and not loosing weight and had me upset about it. I have finally stopped loosing weight and I am sure the eating will come along soon. I think it is kind of funny how upset I used to get over not being able to loose weight and now I am twice as upset that I might loose more weight. I can still stand to loose 20-30 pounds but I know this is not the time to do it, the thing is I am not in any danger of being under weight. Thanks again!
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers 3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13 rad end 5-29-13
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Infected PEG, no desire to eat
| rosymonroe | 06-12-2013 09:32 PM |
Re: Infected PEG, no desire to eat
| fishmanpa | 06-12-2013 10:21 PM |
Re: Infected PEG, no desire to eat
| julieann | 06-12-2013 10:21 PM |
Re: Infected PEG, no desire to eat
| Uptown | 06-12-2013 10:25 PM |
Re: Infected PEG, no desire to eat
| PaulB | 06-12-2013 11:14 PM |
Re: Infected PEG, no desire to eat
| ChristineB | 06-13-2013 12:38 AM |
Re: Infected PEG, no desire to eat
| donfoo | 06-13-2013 05:31 PM |
Re: Infected PEG, no desire to eat
| PaulB | 06-13-2013 07:02 PM |
Re: Infected PEG, no desire to eat
| donfoo | 06-13-2013 09:24 PM |
Re: Infected PEG, no desire to eat
| rosymonroe | 06-14-2013 12:24 AM |
Re: Infected PEG, no desire to eat
| ChristineB | 06-14-2013 03:28 AM |
Re: Infected PEG, no desire to eat
| Cheryld | 06-15-2013 02:00 PM | |
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