So today was an interesting day and a touch closer to reality. Met with surgeon for consult on PEG. I had already made the decision prior to the appointment. For me it is a motivator to keep swallowing and not use the tube. For my wife it is some peace of mind. 2nd appointment was with audiologist to establish baseline for hearing. 3rd appointment was with research team to fill out survey. Biopsy sample is in CA being verified. Insurance has blessed participation in clinical trial for chemotherapy. Should know by end of week which group I am in. Cisplatin for group 1 or Cetuximab for group 2. 3rd appointment was final CT scan to map radiation focus. Also fitted with mask. That was a dose of reality. Final appointment was dental hygienist for last cleaning and dentist for tray molds. Radiation starts on June 3rd.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.