| Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Do have them check for the presence of the HPV virus. It is common with a BOT primary and I assume mets to one or ore nodes? Getting the chemo weekly is better IMO as it usually lessens the chemo's side effects and so far no study has determined weekly vs the 3 Big Bag method decreases the chemo's impact on the overall treatment. I did not get a PEG and I'm waaaayyy glad I didn't. The Tx most likely won't start to get nasty until week 4 and it seems to get worse progressively until appx week 3 POST Tx. There is an alternative to the PEG and that is the nasal tube so if it does get ugly then consider that. Who will be his Caregiver? Where is he being Tx'ed? If he wants to talk PM me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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