Hi Timm, I pretty much echo what's been said so far. I would add that since your hubby is in good shape and works out, he should know that working out while taking the chemo and the radiation would make the process much easier to deal with. I especially endorse the suggestion to try and get the Cisplatin in many, small doses as opposed to three mega-doses.
I had the 3 application version and I lost my sense of taste first, then by the end of my first week I was so nauseated that it was all I could do to keep down a single bottle of ensure plus each day; and that was a struggle.
Anti nausea drugs were no help, and a couple made it worse. Cannabis, however, got me through. IF you are a Medical Marijuana state, get a card ASAP.
I was deathly nauseated for 90 days and lost 38 lbs of mostly solid muscle. Since Dec, 2010, I have only been able to regain 12 lbs, up to 166.
FWIW, I'll be 74 on the 10th of May.
I've had two recurrences, both in my liver, each treated with chemo only, and have knocked all active tumors out with the chemo.
And I worked out, three days a week all throughout the chemo (for the 2nd and 3rd occurrences post cisplatin) and the chemo did not bother me, other than to cause a bit more neuropathy (primarily hearing losses).
My theory, and my MO has come to agree with me, is that working out so elevates your metabolism that it eliminates the chemo much more quickly that it does for someone who does not workout.
Last edited by Bart; 04-25-2013 03:44 PM.
My intro:
http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!