[quote]Believe it or not, being treated at a CCC really does make a difference.[/quote]Hi Christine,
I know you are really pro CCC and I agree that these centers likely offer the smoothest workflows, most integrated inter-department procedures and computer systems, more focused and specialized, and in general just plain easier to go to a "one stop" solution.

However, I believe strongly that equal care can be had and possibly even better via point solution providers. I think there are HNC specialists in each key area: ENT, surgeon, MO, RO that exist outside the formal NCCN CCCs. You would likely have to do more research and also have a fair amount of luck to build your own team but I think it is realistic.

That said, given the way a cancer diagnosis is hurled at nearly all of us, leaving little time to do such planning and research then I agree going to a known NCCN CCC is a very good option.

So, why am I carping about this. Because I feel just plain fortunate to have a team that is combined from a couple different yet partnered medical systems that I trust totally with my life and care. I did not choose this option and it more or less fell into my lap but I have full confidence and trust in them all. The tumor board that assembles each week is from at least two different care systems so I feel this is even better than tumor boards composed of all members of the same organization. To me I get broader and more balanced and less biased recommendations as all are not under a single central authority which likely has some dictums and strong opinions on standard of care that they need to sing off the same song sheet.

Also, there are the logistical complications of traveling and getting all service from a CCC that might be hundreds of miles away, making it very hard for some folks to temporarily relocate due to family and job duties and such.

I'm just offering a different perspective that if you do not make it to a CCC, you can still have great odds and not feel like you are receiving second class care or a death sentence by seeking alternate provider options.

don