debbie, welcome to OCF. Yes there are a few members who have had this procedure. I imagine its not easy living in your condition. But try your best to think of all the positives in your life. Best thing is you are still here. Its a difficult thing to adapt to the new normal when its a drastic change from the person you were pre-cancer.

Oral cancer caused me to become disfigured, I am missing half of my lower jaw and lost all of my teeth. I know Im very lucky to be alive and spend my time helping others. By helping other oral cancer patients it helps me to be productive and to give back.

I ave a few friends who use webwhisperers. From what they have told me its a good organization with several hundred members.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile