Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | debbie, welcome to OCF. Yes there are a few members who have had this procedure. I imagine its not easy living in your condition. But try your best to think of all the positives in your life. Best thing is you are still here. Its a difficult thing to adapt to the new normal when its a drastic change from the person you were pre-cancer.
Oral cancer caused me to become disfigured, I am missing half of my lower jaw and lost all of my teeth. I know Im very lucky to be alive and spend my time helping others. By helping other oral cancer patients it helps me to be productive and to give back.
I ave a few friends who use webwhisperers. From what they have told me its a good organization with several hundred members.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |