Hi Stacey. I'm sorry your husband is being such a PIA! It's so incredibly hard loving someone so much and watching them self destruct. I don't understand how none of his doctors suggested a feeding tube. My husband reluctantly got one but "knew" he wouldn't need it. LOL - I don't think he would have survived without one. It is just another "tool" to get patients through treatment. Unfortunately you have found this out to late. Hydration and nutrition are so important during and after treatments. I know you are at your wits end. Do you think you could talk to the doctors about having a PEG tube put in? John had his removed 3 months after treatments ended. The radiation continues to build once treatments stop so it takes a while to feel better. It took John months and months to be able to eat "normally" again.

I would put some phone calls into his doctors and let them all know what is going on and his current state of mind. Hang in there! We are here for you! Remember to take care of yourself.


Last edited by slim; 04-01-2013 07:47 AM.

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2