 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Its only natural to be concerned about the unknown but try not to worry too much! Yes, Kevin is correct everyone is different and responds in their own unique way.
Mouth sores can be controlled with rinsing a few times per day with a mixture of 16 oz warm water, 2 tsp baking soda and 2 tsp salt water. Some members have found manuka honey works on the mouth sores. Magic mouthwash will help as well.
As far as a feeding tube goes, think of it as a tool to help you get thru this. Some need one, others dont. Its a personal decision. Some can get away with just a nasal tube. Magic mouthwash will help you to continue eating and drinking. There are always liquid formulas like Boost Very High Calorie drinks to have instead of solid food. Take this as it comes as its too hard to predict what will happen.
We are here to support you thru this. Spend some time reading and educate yourself. An informed patient is a good advocate for themself!
Best wishes with everything!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
