Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Monica - my son had surgery, then radiation. He did not have a feeding tube and didn't have any teeth extracted and he is doing great now, six years later! We didn't find OCF until Paul was already into his Rad Tx so at the beginning when the docs mentioned feeding tube, we didn't get many details on how long or how it could save a lot of sore mouth problems. I think that if we had known then what we have since learned here, he probably would have elected to get the tube. Lots of people here have had experiences with feeding tubes so if it is needed in your case, I'm sure you will have lots of help and support. Try not to worry about things that "could" happen because they might not ever happen. Try to think about all the things that could go Right! instead. When my son had his first meeting with the RO, they showed him everything and how it would happen and even invited me into the room where he would be. They also invited him to bring a music CD for them to play for him during his treatment or they would play some they had there. I'm sure you will feel a lot better after you meet with the RO. Between now and then you could get all your questions ready. It might help lessen the anxiety if you bring someone with you and another set of ears can help you remember what they tell you. Between now and the 26th, try to keep busy with things you like to do. And let us know how your appointment goes.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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