I have been having what feels like muscle spasms on the left side of the underside of my chin for a few months now. Usually happens when I exercise and my heart gets going, I yawn, or try to hum. But every now and then, it just does it because.

I wasn't able to see a doc because of an issue with medicare since december and I am 6 months overdue for a scan. I haven't had a scan for a year now, and am 2.5 years out of treatment for initial dx. But none of my scans have been clear, no cancer, just activity. They were going to watch, and scan every 6 months, but thanks to medicare, I wasn't able to get my last one.

Now I am scared out of my mind because when I feel the pain, the only thing that gets it to stop is if I put some sort of pressure on it, or stretch out my muscles, but if I do the same thing again, it comes right back.
When I was putting pressure on it, I felt a round form, and now my mind is running wild with it.

Things are finally getting back to going right in my life. I am supposed to be starting a new program in college in the fall, and be in a friends wedding in may, and I am afraid because things are finally starting to go good again, and that this pain has been going on for months now, and the round form I felt, that I may have to fight again.

I can't get my brain to shut off tonight, hence the post. I have an appointment with a new ENT and dietician on march 20th, which I know isn't that far away, but when you are in pain, and worried, and scared, it's seems like forever.

I just want an answer, but i fear my answer will be that I will have to fight again. One of the spots of activity on my scans has always been the anterior floor of my mouth, but they did a biopsy about 2.5 years ago and everything was fine, but no biopsies or anything since.

Hopefully it just comes back as a blood vessel that is pinched, or something, I don't know what else it could be. My dentist tried to tell me it was my jaw muscle because I was clenching too tight, but I told him it only happens when I open wide, heart rate elevates, or try to hum, and sometimes no reason at all, and he then asked, well you see your cancer docs regularly yes? that really put me at ease.

Last edited by EricS; 03-12-2013 08:46 AM.

25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010