Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 8 | Dear Stacey, having followed your journey from your very first post, I can imagine how very frustrated and tired you must feel, having to fight him over everything. Do you have access to a visiting nurse who can come into your home and monitor his vitals, and, in general, share your burden of care? I would keep an eye on him and get him to emergency if his condition deteriorates -- dehydration can strike swiftly and hard. Hang in there, we are holding your hand.
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. |