Stacey, Im very sorry to read about your husbands current condition. You have been the best caregiver he would allow. Its a shame he fights you with everything. Wish I knew of something to help you get him back on track. Ive been dehydrated and I felt awful, I actually thought I was dying I felt so bad. All it takes is for him to get properly hydrated and enough calories in and he will turn right around to feeling better.

After that doctor visit, I would have thought he would have begun to drink and eat. Ive always thought depression played a part is his stubbornness. To me it sounds like everything he has not been doing like he should have all along has finally caught up with him. If he chooses not to co-operate and refuses to eat and drink then his future includes a nice long hospital stay. They will probably send a hospital therapist in to see him while he is there.

His sense of taste wont be back to normal for quite some time. Its ups and downs for months after finishing rads. He is not the first one to struggle like this but it really is completely optional. If he can eat and refuses then its his choice. He could be feeling better today if he would drink and eat, its up to him as a grown man to stand up and take an active part in his recovery. It all comes down to hydration and nutrition, take in enough and you will go thru this easier.

So sorry that you are having such a hard time with him! Just remember as a caregiver you need to take time for yourself to catch your breath.

Good luck!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile