Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Stacie, Once your husband has finished his treatment if you want to consider making a change to a major NCI cancer center here is some info to help you. I know you mentioned Moffitt was too far for you to travel. In the future if you wanted to go to Moffitt, there are places which will give free or very deeply discounted lodging for cancer patients. When I say deeply discounted its like $10 a day and thats to help cover the cost of meals. I think one place that is set up near major cancer centers in several sites is called Hope Lodge.
Best wishes with his continuing treatments. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |