Welcome Stacie. We're just ahead of you on this journey, my husband was diagnosed April of 2012. One question from your intro, you asked that he be tested for HPV, did they test the original tumor itself? It's important you know if that tumor is HPV+. I'm sorry ya'll are going through this, but glad that you have found this place, there's a tremendous amount of support here.

wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED