Here is my take. I was 43 in very good shape, runner, no smoke. I thought I could just live through the pain. Well that ain't what happened.
It is not just pain, I also feel sick, I had no appetite, everything made me gag, and I was in chemo fog mentally.
For me eating was just not possible. When it was really bad, I gravity fed slowly just to keep what I could get in to stay down. I still lost 25 lbs.
For me it was either the PEG, Hospital, Both or Worse.
My recommendations are the HD 5 Step plan:
1) Get it and don't use it. 2) Then use it as little as possible 3) Then use it as much as possible 4) Then back to as little as possible. 5) Then get that thing out of your belly.
Step 4 is going to hurt. Step 5 hurts too, but only for 10 seconds.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
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