Shelby,

We chose the PEG before radiation as it was explained to us that if one looses too much weight in the middle of RT, the mask can become loose and needs to be refitted before continuing. The ideal way to get through RT is to NOT have any breaks other than the weekends off. We didn't want to run that risk and felt that Clark would NOT use it until it was necessary. Well, it became necessary in the 4th week and we are both glad we did it that way.

It is a temporary thing. When you can demonstrate that you can consume all your nutrition by mouth, it comes out. My husband had a lot of complications following RT that necessitated him keeping it for a total of 2.5 years before it was removed. But I think his story is a bit unusual. Seems like most people here have had it taken out months after completing RT.

Anyway, we have had no regrets using the PEG. It saved Clark from becoming malnourished. Go with your instincts on this. You know what you can tolerate however, having said that, RT is unlike anything you have ever done and will be a very challenging time for you. I wish you the best during your treatment with whatever way you choose. This forum has success stories from both the PEG users and those who did not use it.