| "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | You are absolutely right Ed, there are many who benefit from your substantial knowledge of late side effects. Doctors and patients are all dealing with immediate issues and in my opinion that is where we all should put our focus. What gets lost is the "long term" side effects which you are so well versed in. We all pray that these are things we will be lucky enough to deal with someday, but when they arrive help IS needed. Thank you for so generously sharing your experiences and tips.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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