Great to hear from you all. I escaped from the hospital late yesterday, the major delay being a requirement to have a working nebulizer delivered and set up at home, plus the DuoNeb medication prescription filled. and a working suction machine prior to discharge. Suffice it to say that in order to do this, I had to harass, chide, and threaten multiple parties. although in the end, my harmonious relationship that I have carefully cultivated to be free of any of the above tactics, with one pharmacist turned out to be the key to success. but then she has always been reasonable and responsive to that approach which others apparently see as permission to put my requests on the back burner or ignore.
Not out of the woods yet, still very weak, heavily congested, and treatments every four hours for about the next 20 days looks like my immediate future, but nothing I can't handle.
Especially since the alternative was to have a permanent tracheotomy tube as was their initial recommendation.
Hate to skip my gym workout today, but that's the price I pay for not acting earlier on this.
Slept wonderfully in my own bed last night.
Oh, I did not mention that one of the negotiated issues with the doctors at the hospital for my release was to see my cardiologist to verify that my insanely high readings on blood pressure and heart rate the entire hospital stay were in fact just objective evidence of my anger over rigid hospital requirements like being kept on a 24 hour IV drip, a 24 hour EKG monitor, etc etc that were never necessary for me yet non negotiable as an admitted patient. I know I should just let it flow off my back and accept it with zen patience, but on a visceral level, I see that as giving into bureaucratic evil, so it shows up in those readings. The heart issues predate the cancer although both were discovered within the same month.
Still loving life though. Thanks again for all the support
Charm